Patient Rights and Responsibilities The Patient’s Bill of Rights was first adopted by the American Hospital Association in 1973. Patient rights were developed with the expectation that hospitals and health care institutions would support these rights in the interest of delivering effective patient care. A physician’s ultimate goal should be patient welfare and alleviating suffering. […]
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Thoughts on Self-Advocacy
Thoughts on Self-Advocacy Self-advocacy. A simple Google search of this word does not do it justice. Apparently, there are parts to it. In fact, there are 3 parts: (1) knowing yourself, (2) knowing your needs, and (3) knowing how to get what you need. Recognizing these parts of self-advocacy is important when you reflect on […]
Gratitude for Little Victories
Gratitude for Little Victories In Roald Dahl’s children’s story Charlie and the Chocolate Factory, five Golden Tickets are hidden inside five chocolate bars. In the craze to find these rare Golden Tickets (and thereby win an exclusive tour of the chocolate factory and a lifetime supply of chocolate), many people lost sight of the joy […]
Universal Design
Plain Language Summary: Universal Design Most people will have a disability during their lifetime or will know someone who does. Also, the way we interact with the world can be affected in many ways. Some examples are breaking a bone, being pregnant, or not being able to focus in a noisy environment. This is why […]
See What’s on the Inside
See What’s on the Inside In the musical The Hunchback of Notre Dame, the protagonist Quasimodo has physical deformities and has been forbidden by his villainous master from ever leaving the bell tower of Notre Dame Cathedral. His lifetime of profound isolation leaves him longing for just one day out among the people. He has […]
Determinantes sociales que afectan la salud de la comunidad hispana/latinx con discapacidades (Social Determinants Affecting the Health of the Hispanic/Latinx Community with Disabilities)
Resumen en lenguaje sencillo: Determinantes sociales que afectan la salud de la comunidad hispana/latinx con discapacidades Nota: Elegimos utilizar tanto hispanos como latinos para incluir a personas de varios países. Esto se debe a que las opiniones difieren sobre qué países incluyen cada uno de los términos hispanos y latinos. Además, usamos Latinx porque es […]
Let’s Be Clear
Let’s Be Clear Have you ever had someone tell you an inside joke that you didn’t understand? Have you felt like an outsider because other people were laughing and all you could do was laugh along or look confused? It feels frustrating to not understand something that other people seem to understand. Humor is built […]
El trastorno del espectro autista y la comunidad hispana-latinx (Autism Spectrum Disorder and the Hispanic/Latinx Community)
Resumen en Lenguaje Sencillo: El Trastorno del Espectro Autista (TEA) y la Comunidad Hispana / Latinx La tasa o promedio de personas identificadas con el trastorno del espectro autista (TEA) en los Estados Unidos ha aumentado significativamente. Pero el TEA continúa siendo infra-diagnosticado (en menor número) y diagnosticado más tarde en la comunidad hispana / […]
We All Need Support
We All Need Support Have you ever considered joining a support group? It can be a place to make connections with people who have similar experiences to yours. As you hear about others’ journeys and what worked and did not work for them, you can get ideas for what might work for you. Many of […]
Connections Matter
Connections Matter Every human being goes through times when they feel isolated from others, if not physically, then socially or emotionally. There is a basic human need to connect, to feel part of something, to feel like we belong somewhere, to not feel like we are missing out. For those with mental health issues or […]